The Long COVID Survival Guide: Stories and Advice from Twenty Long-Haulers and Experts

The first patient-to-patient guide for people living with Long COVID—with expert advice and an afterword by the leading research scientist

After coming down with Long COVID in 2020, Fiona Lowenstein felt completely alone. Looking for information and community—but not finding it—Fiona started their own online support group. The response was overwhelming: Thousands of fellow patients joined to share advice and experiences as they learned to cope with Long COVID’s many symptoms: brain fog, loss of smell and taste, and chronic fatigue among them.

A support group in book form, The Long COVID Survival Guide is packed with sought-after answers and reassurance to guide readers through the uncharted territory of this new illness. Twenty contributors—from award-winning journalists, neuroscientists, and patient-researchers to corporate strategists, activists, and artists—each explain their realm of expertise in how to:

• get diagnosed
• confront medical racism and gaslighting
• navigate employment issues
• deal with fatigue and neurological symptoms
• care for your mental health, and more.

While doctors and researchers continue to work toward a cure, The Long COVID Survival Guide steps in with the information that patients need now.

Contributors: Karyn Bishof, JD Davids, Pato Hebert, Heather Hogan, Monique Jackson, Naina Khanna, Lisa McCorkell, Karla Monterroso, Dona Kim Murphey, Padma Priya, David Putrino, Yochai Re’em, Rachel Robles, Alison Sbrana, Chimére L. Smith, Letícia Soares, Morgan Stephens, and Terri L. Wilder