The Long COVID Survival Guide: How to Take Care of Yourself and What Comes Next—Stories and Advice from Twenty Long-Haulers and ExpertsThe Experiment + ORM, 08.11.2022 - 305 Seiten The first patient-to-patient guide for people living with Long COVID—with expert advice on getting diagnosed, dealing with symptoms, accessing resources and accommodations, and more. A support group in book form, The Long COVID Survival Guide is here to help. Twenty contributors—from award-winning journalists, neuroscientists, and patient-researchers to corporate strategists, activists, and artists—share their stories and insight on topics including:
Contributors: Karyn Bishof, JD Davids, Pato Hebert, Heather Hogan, Monique Jackson, Naina Khanna, Lisa McCorkell, Karla Monterroso, Dona Kim Murphey, Padma Priya, David Putrino, Yochai Re'em, Rachel Robles, Alison Sbrana, Chimére L. Smith, Letícia Soares, Morgan Stephens, and Terri L. Wilder |
Inhalt
Chapter 3 | |
11 | |
Chapter 5 | |
Navigating Research 1 Types of Studies | |
Locating Studies 3 Analyzing Studies | |
Understanding Your Own Illness | |
Getting Involved in Research | |
Chapter 12 | |
Disability Justice | |
Afterword 42 The Future of Long COVID 43 Learning from Patients What Comes Next _______ | |
Glossary | |
Closer Than They Seem | |
Chapter 6 | |
Why Pursue a Diagnosis? | |
Rachel Robles Long COVID patient and advocate | |
David Putrino Associate Professor Department of Rehabilitation and Human Performance Icahn School of Medicine at Mount Sinai New York City | |
Chapter 7 | |
Turning to the Science for Hope | |
How Do I Get Help? Finding Health Care Providers and Counselors | |
Am I Really Alone in This? Long COVID Is a Family Affair | |
Support Groups Can Be a Lifeline | |
Celebrating Small Victories as We Climb Out of the Dark | |
Chapter 8 | |
Chapter 9 | |
The Search for Community 34 Finding PeertoPeer Support _______ | |
Chapter 11 | |
All You Need Is One Person 2 Chapter 1 It Wasnt the Beans and Rice 3 Chapter 2 Standing Tall and Sitting Right Back Down | |
COVID Cant Be Outpaced 5 Chapter 4 With Disability Comes Rights 6 Chapter 6 The Obstacle Course | |
Down in the Well We Will Mourn and Sing | |
The Search for Community 9 Chapter 11 Knowledge Is Power | |
Such a Powerful Love 11 Afterword THE FUTURE OF LONG COVID | |
Acknowledgments | |
A few last words | |
Resources 1 Support groups | |
Websites and hotlines | |
blogsarticlespodcastsdocumentaries | |
Index | |
About the Contributors | |
About the Editor | |
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The Long COVID Survival Guide: How to Take Care of Yourself and What Comes ... Fiona Lowenstein Keine Leseprobe verfügbar - 2022 |
Häufige Begriffe und Wortgruppen
ableism activists advocacy advocate antibodies anxiety autonomic nervous system blood pressure body brain fog breathing cardiologist caregivers cause chapter chronic illness clinical cognitive dysfunction complex chronic condition cytokines diagnosis disease disorder doctors dysautonomia experience experiencing Facebook fatigue feel felt friends health care providers health insurance heart rate hospital ill and disabled infection issues knew Latinx living with HIV Long COVID patients Long COVID symptoms long-haulers loved manage ME/CFS mental health months myalgic encephalomyelitis navigate nervous system organization pacing pain pandemic parasympathetic nervous system person physical post-exertional malaise post-viral illness programs pulse oximeter rest Sabrina share SHE/HER sick sleep social media someone SSDI STOP struggling support groups survive sympathetic nervous system tachycardia talk things tilt table test told treatment triggers understand viral virus weeks Yochai
