The Long COVID Survival Guide: How to Take Care of Yourself and What Comes Next—Stories and Advice from Twenty Long-Haulers and Experts

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The Experiment + ORM, 08.11.2022 - 305 Seiten

The first patient-to-patient guide for people living with Long COVID—with expert advice on getting diagnosed, dealing with symptoms, accessing resources and accommodations, and more.
" The Long COVID Survival Guide aims to give people struggling with long COVID practical solutions and emotional support to manage their illness."—NPR, It's Been a Minute

For people living with Long COVID, navigating the uncharted territory of this new chronic illness can be challenging. With over two hundred unique symptoms, and with doctors continuing to work toward a cure, people experiencing Long COVID are often left with more questions than answers.
A support group in book form, The Long COVID Survival Guide is here to help. Twenty contributors—from award-winning journalists, neuroscientists, and patient-researchers to corporate strategists, activists, and artists—share their stories and insight on topics including:
  • getting diagnosed
  • finding a caregiver
  • confronting medical racism and gaslighting
  • navigating employment issues
  • dealing with fatigue and brain fog
  • caring for your mental health, and more.
This vital resource provides the answers and reassurance you need, to take care of yourself and prepare for what comes next.
Contributors: Karyn Bishof, JD Davids, Pato Hebert, Heather Hogan, Monique Jackson, Naina Khanna, Lisa McCorkell, Karla Monterroso, Dona Kim Murphey, Padma Priya, David Putrino, Yochai Re'em, Rachel Robles, Alison Sbrana, Chimére L. Smith, Letícia Soares, Morgan Stephens, and Terri L. Wilder
 

Ausgewählte Seiten

Inhalt

Navigating Research 1 Types of Studies
Locating Studies 3 Analyzing Studies
Understanding Your Own Illness
Getting Involved in Research
Chapter 12
Disability Justice
Afterword 42 The Future of Long COVID 43 Learning from Patients What Comes Next _______
Glossary

Closer Than They Seem
Chapter 6
Why Pursue a Diagnosis?
Rachel Robles Long COVID patient and advocate
David Putrino Associate Professor Department of Rehabilitation and Human Performance Icahn School of Medicine at Mount Sinai New York City
Chapter 7
Turning to the Science for Hope
How Do I Get Help? Finding Health Care Providers and Counselors
Am I Really Alone in This? Long COVID Is a Family Affair
Support Groups Can Be a Lifeline
Celebrating Small Victories as We Climb Out of the Dark
Chapter 8
Chapter 9
The Search for Community 34 Finding PeertoPeer Support _______
Chapter 11
All You Need Is One Person 2 Chapter 1 It Wasnt the Beans and Rice 3 Chapter 2 Standing Tall and Sitting Right Back Down
COVID Cant Be Outpaced 5 Chapter 4 With Disability Comes Rights 6 Chapter 6 The Obstacle Course
Down in the Well We Will Mourn and Sing
The Search for Community 9 Chapter 11 Knowledge Is Power
Such a Powerful Love 11 Afterword THE FUTURE OF LONG COVID
Acknowledgments
A few last words
Resources 1 Support groups
Websites and hotlines
blogsarticlespodcastsdocumentaries
Index
About the Contributors
About the Editor
Urheberrecht

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Häufige Begriffe und Wortgruppen

Autoren-Profil (2022)

Fiona Lowenstein is an award-winning journalist, producer, speaker, and the founder of Body Politic, a grassroots patient-led health justice organization. Lowenstein was hospitalized for COVID-19 in March 2020 and went on to found the Body Politic Covid-19 Support Group, which offers support and resources to over eleven thousand people living withCOVID-19 around the world. They live in Los Angeles

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